Archives for category: bereavement

Boxing Day last year and we had a stupid ‘disagreement’. I flounced off, pony tail swishing to stomp and sniff in the bedroom whilst he relocated his trusty cave to the bathroom for a two hour sulk. But our plans got in the way so instead of us both simmering quietly until a resolution, we had to haul ourselves out to a jolly family social event. Eye contact and normal service had resumed by the time we’d done Twister and ate cheesy things. But my memory of that time is not about the silly arguments that I miss as much as the joy, it’s about the large tissue papered lantern in the shape of Sponge Bob that grinned inanely at us from the conservatory.

The Christmas lantern parade was a local tradition, a beautiful heralding in of the Christmas market, the ice rink, the lights switching on and that lovely warm feeling of love and togetherness. We were impressed with the Bikini-Bottomed wonder and promised we’d join them next year for the lantern workshops and the procession itself.

At some point in November my friend reminded me of the workshops and was I still interested? I said I’d check in with our son and though part of me wanted to hibernate indefinitely and absolutely not go near anything remotely sparkly, I knew if he was up for it then we would ‘join in’ and I would wear extra armour.

And so it came to pass that by the time of the workshops he had planned to make a Borg space ship from their beloved Star Trek series. I appreciated the blackness of the symbolism. Borg are the ultimate alien, all things in their path will be assimilated and even ‘Death is irrelevant’ …ah, if only. I loved the fact that he was making a dark cube with very little that would light up amongst the twinkly illuminating glowing stars around us. The helper on the workshop was concerned he was using too much black tissue paper and the light wouldn’t show through. Without breaking down and sobbing I assured her, it was ok, and it was important that it was a faithful (to us) replica of doom.

Somewhere during the process I decided to make my own lantern and there was only one thing that it could be. My Tao symbol would be perfect. Our son found it funny that mine would be ‘all about love’ whist his was all about destruction and through the torture I saw the beauty of what we were embarking upon. I was increasingly concerned that it would be upsetting for him to hold up something that represented Daddy but through gentle questioning I found he didn’t appear to see what I did.

Mine was all about the Rite itself, down to working with the willow to gradually bend it to shape, and the forming and smoothing to build it into what it needed to be, and the papering over the cracks and damage, which were, in the end, irrelevant as the light would still shine through despite its imperfections.

I was fearful of how or if I’d get through the procession itself. How could I stand there and watch this symbol of my life be lit up? I couldn’t imagine….but I knew it would happen somehow.

The evening dawned and the car was full of excited children and a large ‘Hello Kitty’ head courtesy of our friends who had gone for a pink and white look rather than last years yellow. I cradled my lantern on my lap and returned to my trance like February service state of mind.

We started from the top of town, the Great Hall a heaving mass of anticipation and one upmanship. The lanterns and their creators paraded around each other like size zeros on the catwalk and objectively some, actually, many were amazing and elaborate but my relatively small and delicate Tao symbol was my only focus and I stood solemnly holding it aloft with a painful pride.

I encouraged my friend to stand near the door as even in the old world I wasn’t over keen on crowds, and with my fragility at an all time high, feeling highly strung and wanting to bolt, I prefered to be at the front of the throng. Plus in my head and heart the whole thing was for us anyway, for a celebration, a marking , a journey and me and my agony deserved to be in the vanguard.

We were ushered out to the waiting darkness and streamed into sections for the candles to be lit. By chance I was directed to the one that was flanked by the TV crew and though I would never see the footage, my sparkly tearyness at the moment of lighting was captured somewhere in time.

I had survived the start, put on a public face and now stood with our son and the Borg ready to weave our way to the Cathedral.

And through the winters air the wrapped up band played carols and the streets were lined on either side with children on shoulders, character spotting and ooing and ahhing, and we followed a crack squad of lantern makers who had pieced together a wide selection of Star Wars inhabitants. So I followed the tissued papered Yoda, quite fittingly with my Eastern promise to ‘feel the force around’ me and the crowd cheered, whooped and clapped and were amazed at our creations. Although I knew they weren’t clapping us specifically or probably had not even noticed us but our pain shone out over and above it all, and in my heart our lights were the brightest. And my wet eyes were not for the warmth of the spectacle or exciting Christmas spirit but for the landmarks of our life that I ticked off as I strode proudly but weakly past the statue near his workplace and abandonedly unravelled the memories as I made my pilgrimage with dignity to the bottom of town.

At the Cathedral all lanterns were parked against the railings for the waiting paparazzi to shove and consume. I held it together though inside the wailing was building. I felt numb, relieved, respectful, broken, exhausted, defeated and done. All I needed was a moment to gather myself and I’d be more than ready to pile back in the car, to crumble home and sob while he watched Star Trek downstairs.

But it wasn’t going to be, as the children wanted to see the fireworks. So just to ignite a little more pain we waited for the crowd to thin with a quick moment or two in the cathedral where my friend talked about buying the tour as a present for her husband and I spun and swooned on the inside remembering millenium Eve and the messages we wrote for our unborn baby. That Eve at the cathedral with the messages for the tree and the chimes we didn’t hear but we knew. And I could hardly look the building in the windows for the anguish it unleashed in me. so I just added it to the pile for later. Our son was enjoying himself and I was paying tribute to our life.

We edged round to the market where I looked down as much as possible. I didn’t want to see the ice rink with him drinking coffee or the twinkly German chalets replete with stuff I wanted but didn’t need and had so loved last year. It couldn’t be me who was here last year trying to decide on the wrought iron robin or cockerel. It was someone else’s life, but if it wasn’t real while did the panic grasp and bind itself round my throat again?

My window of strength had long since closed and I was close to stopping the pretence but if I let the mask fall I feared I would spiral out of control completely and that wouldn’t be a good end to the evening, it would have distressed our son and perplexed passers by (not that they mattered at all). It was a familiar management exercise but this one took every ounce of my last reserves. Every moment came with a ribbon and bow, all brightly coloured and garish, screaming out to me ‘here is your life, look closely at it, remember it well, because it won’t happen again’ and every exploding firework shattered through me and we were way too close so it hurt to listen. Whilst all around me winced and shielded themselves with mittened ears, I stood there bare hands with knuckles clenched feeling the pain of every flare as it drilled itself into me. And every flash reminding me of the years our son struggled with the loud bangs. Now he looks upwards without a flinch as I pray for the panic to subside whilst wishing I could be shot away on one of the rockets to burst and splinter into the sky, to shed my colours over the earth and leave the crowd gasping. So I let the wretched fantasy play out till the acrid smoke descends all around us and for a second I let go of the tension in my hands.

We began the return trip through the disapating throngs, everyone tired and drifting with that ‘after the concert’ sort of listlessness. but for me it wasn’t over. I still had the final part to walk in silence without the crowds to revisit, to hurt and to thank.

All those around me, including our friends, carried the lanterns under arm or over shoulder, their job done for another year. But mine was not about Christmas, it was about a life and a love. While our son swung his Borg cube to terrorize ‘Kitty’ I persisted in holding up both my head and the lantern and quietly noticed our moments as I passed by them. Held high past the pillars where we walked with me in my grey stilettos, Millennium meal on that magical night. And the call to his mum but we couldn’t say what we wanted to, by the same shop for my last birthday where we stood but we didn’t know what was approaching. And Waterstones as usual, with our son’s new book, still making my arm ache as I looked up to the glowing light. And every other walk and second till the final piercing past the statue at his workplace with all the times we met him, tired and stressed, walking ahead, heels clicking to the car park after some story spinning in his big black chair. A glance left and was torn hollow by the darkness till the final shot at the jewellers where we chose my wedding day locket.

And through all the twinkly comforting warmth, the glistening merriment, the joy of happy fizzing people, the beautiful glimmering of days without pain – walks my newly shaped family. My new world. The crisp, aching, undecorated reality of a torn existence, gutted, gouged and discarded amongst the other world of Christmas Loveliness. A beautiful middle class Hampshire way, coupled up, linked arms, rosy cheeks and wooly hats…. and us

never closer to death.

I lowered my lantern as we got to car park and the children chattered on my reflective journey home. Past A & E in silence and my friend hoping it had been ‘ok’ for us. Thank god I’d left the lights on as we bundled back through the door to carefully place the lanterns before I took my pounding grief upstairs as our son boldly went on his usual way.

Our assimilated anguish

My wounded soundless solemn walk

A broken pilgrimage

Our lanterns lit for love

My walk through the hours

My endless tears

Our cradled pain

And the blown out candle of our life

xx

Had enough of the colony today.

Well that’s not quite right, I just don’t belong here anymore. It looks familiar and I remember how it use to be, how it used to feel. But now the strangeness is back; something not quite right, something underhand, out of true, discordant with the day. In my walk to school I’m filmed from behind, (the audience see the doom but I pass through it) or there’s just a glimpse of me through the trees. It’s in the trees, it’s coming, then rustles and retreats as I crawl home. I know it’s there but I can’t see it watching me. I believe there’s no imminent danger, yet it drags down every footstep, every second of this minor chord existence, in this tumbleweed of detachment; this barren incomplete wandering.

I came home the adapted way over the fields to avoid the usual ephemera of people. I could see my breath for the first time in months. The sun rays bounced back off suburbia. Glistening normality and for a second the sky became the coastline and I found myself in a different county looking out to sea. The light changed and I dropped back into the landscape. I knew there would be no peace with the clouds today, no point in watching. Irrelevant invisible observer – with no impact today. Unravelled myself carelessly back to the Shell and slipped into disintegration.

Disoriented

ended up in places I shouldn’t be.

nothing fits, the sense of unease gnaws away

the desolation seeps in.

Today – I feel the burn of the ice, I’m a long way from the ocean.

Here I am…
http://www.youtube.com/watch?v=zWH_9VRWn8Y&feature=youtube_gdata_player

x

Yesterday in a land far far away (Windsor) we arrived for a belated birthday trip to Legoland. This is one of my sons most favourite places and though theme parks all blur into a oneness for me and this particular one was heavily laden with triggers, I accepted that loins had to be girded, teeth needed gritting and the pain would be smiled through because it was simply what he wanted to do.

As the years have sneaked by the need for a Full On Party has waned. so although I still do party bags even if there’s only two children (because I can’t resist them and spend way too long in Hawkins Bazar getting just the right combination of tat, fun, usefulness, interest and sugar,) I no longer need to book rooms/entertainers/hire bouncy castles or get all the matching partyware together. Of course I secretly enjoyed getting stressed over the correct amount of sandwich/crisps/ to sugar/nonsense ratio and always did it because I loved it not because it was expected.

Whats not to love? Yes there was loads to do, but at the end of the day a room full of tired fractious but happy e-numbered up toddlers was so much fun, and then there was the journey home with rustling and laughing on the back seat as they unearthed and compared their party bag treasures. Gradually the parties got smaller, then evolved into a select band for a focussed “activity”; we did quad bikes and Scaletrix. I know who enjoyed the slot cars more than the kids. My husband would have gone there every time, and often reminded me (after its huge success, despite my misgivings) that it had been his idea. True.

So last year we just took one friend to Legoland. They had a fantastic time while my husband found somewhere to sit and read and I wandered around on wasp patrol (bad year for wasps back then and I’m with two boys both with different allergies and 4 epipens between them…oh and a small bottle of vinegar just to be on the safe side.)

It was a good day, and one month later we’d be off on our big family holiday. This time last year we were heaving and hurling our way through the Bay of Biscay, worried about potential redundancy in the near future and all the little things that stress you out in day-to-day life….but we didn’t see this coming – well you wouldn’t would you? This was not in our long-term plan, this hadn’t been factored in, discussed thoroughly or catered for. This was not on a spreadsheet – anywhere.

So yesterday my fantastic friend drove us over there and with dodgy weather and approaching end of season we hoped for a quiet-ish time. I knew it would be yet another hard day for me and the elephants (although they got in for free because no-one could see them.) So I was as prepared as I could be like the proverbial boy scout. Appropriately so, as by accident we’d picked the one day when all of Hampshire Cubs descended en masse. You couldn’t move for small whipped up herds of children and woggles as far as the eye could see. All being ushered around by amazingly jolly robust types who had clearly missed their calling and should have been in the Army.

Don’t get me wrong – I love children, especially the little ones but the gift shop resembled some cross between The Smurfs and Full Metal Jacket. Trying to navigate around excited hoards of them while struggling with triggers and memories coming at me in rapid fire, conscious of the time because there was one more ride that we just HAD to do. I clung on to my sanity but it was a very close thing.

Earlier in the day while waiting for them to return from the rollercoaster and doing a competent and efficient job of Stands With Bags (my Red Indian name) I was taken with the dream like quality of everything. He wasnt on the bench reading, maybe he’d gone to find the toilet? I stood outside this mocked up fairytale castle feeling like the trapped Princess. If the oversized Lego dragon that I stood beneath had turned its large plastic Danish head towards me and muttered through smokey breath “Non of this is happening, you know?” I would have smiled wistfully in acknowledgement – that would have all seemed perfectly reasonable.

While stood there monitoring my anxiety levels and wondering whether or not I really existed I was whisked away to the start of our adventure.

14 years ago we moved from his one bedroomed cave full of associations, battle scars and conquests to our own home. Big enough for two, and maybe one day more. I remembered the drive up the motorway, with the huge fig plant on my lap and hope stuffed in the boot along with all the others bits and bobs that were too precious for the van. This was the start. And the unravelling when we got there, unable to move in because the previous owner had just started to pack the kitchen….and would be “some time”. Followed by the innumerable trips up and down the main road to the solicitor, to query, then complain and eventually slay in a style that only my husband could do. It was the same solicitors who closed the circle when I hauled what remained of myself over there for probate a few months ago, and while I tried desperately to hold the pen I could still see and hear us in the other room, in the other universe back in Chapter One.

Eventually the storm clouds parted and the woman left the kitchen (she had barricaded herself in at one point,) But she wasnt happy, she wasnt happy at all and came at him, all guns blazing, fist waiving and threats. I remember it so clearly, although she was all hot air, I placed myself between him and her and said “You’ll have to get through me first!” Quite funny really as I was smaller than her, (but then I’m smaller than most people 🙂 and these were the days before the punchball.) She could probably have swatted me away with flick of her finger but that didn’t matter, it was The Principle…this was my fiance – you threaten him, you threaten me.

Of course it blew over, we moved in and created a life. And since then there have been innumerable times when he’d stood in front of me and I’ve lost count of the number of dragons he slayed. The problem with this new chapter is that now I have to slay my own dragons. I am both the Princess and the Knight. At the moment my fencing skills are more confined to creosote but I’m learning. At first I couldn’t even lift the sword and though sometimes I still want to fall on it, I am adapting to its weight. I have to. Plus I have the young Prince to take care of, without him the Kingdom will surely perish.

So I sit here spinning and sobbing in my tower with the daily challenge of trying to construct a suit of armour over a big beautiful sparkly Princess gown. Getting dressed is hard, mounting my trusty steed is harder and going to the toilet is a military operation. (I’m not even sure Princesses use the toilet – but you get the picture?).

My life has become a Quest, another day another battle.

So I play both parts now: sequins and silk over kick-ass DMs. Glass slippers wouldn’t hold out in this rugged terrain anyway, it needs something much tougher. I quite like that creation however, because I am neither just one or the other, I relate to both. I am broken, and vulnerable but I will not be messed with. I have a job to do, a Prince to raise and a Kingdom to defend.

Sword and shield in hand, protecting.

Get through me first.

x
(and how do I live ever afterwards? ….who knows)

Black Granite  heavy crushing Dense

 endless sphere.

 Weight of forcing concrete, achingly solid. 

Drunk drugged

stoned and Slipped. Empty. 

Stabbed then ground down. Left pulped

sanitized blue curtains, chrome.

steel plated bleak straitjacket

frozen

crucified

 

This hasn’t happened I’m not here I will wake . Waiting

I will wake I will wake I will wake I will wake

I will wake

wake

the floor moved up in slomo

heavy head pushed into stomach softness

stench of sterile fabric

rubber stuck round mouth and nose

peeling reeling away

grey tearing lost

wait for, lost

falling

fast tapping on glass get the

wheelchair

where is this

hospital ceiling, faces

this hasn’t happened

Stopped

Stop

Eleven years ago I sat here in pain, my world was changing and I just had to hold on. I was well past my due date with severe ligament damage and an unstable pelvis meaning I couldn’t really walk or even lift a kettle without support.

The natural birth I wanted (for which I had written a Birth Plan – a great work of fiction) went out of the window along with my muscle strength, mobility and visions of early motherhood.

Many days and drugs later I held him for the first time, releasing a primal love that served me through the long years of a slow recovery to health and is my only foundation now in this unstable new life of widowhood.

…So ten years after the birth, sat in the garden on our wedding anniversary, I had the foolish idea to travel to Norway. I reasoned it would be six months by the time of the holiday and I would feel differently.

6 months landed in a second and whilst I’d emotionally, barely moved from the spot, and as I was without a way back, I hauled all of us (me, my son, the suitcases and the pain) off to find our Ship.

A cruise wasn’t really our sort of thing, not what we’d normally do. We were small cottage types with a spider or two in the sink and some old leaflets from 1994 on available attractions. However, we’d done a cruise once before as a special holiday after losing my Mother in law. So I knew the system and as long as it was a different ship thought I’d be ok.

I’d never left the country by myself, never needed to, yet here I was having triple checked the documents, the money and the doors attempting (no, actually going) to do it.

The widows amongst us will understand how some days even to get a pair of boots on is a major achievement, so this was an immense challenge yet I felt compelled by the fear. Although scared I was driven by a determination to do it and something primal kicked in. I had to get out there, build a life for us and shoving suitcases in a taxi was the very first step.

Once on board I came down heavily with a splat. Great, I’d done it, all the practicalities over with… now what? I’m in the middle of the North Sea, looking out for oil rigs and he still wasnt around. Did a part of me think I’d find him on the ship? Did I think it would break the spell and find it had all been some huge hideous mistake? Our son was happily checking out cupboards and trying to make the tv work (like father like son:-) whilst I was sobbing quietly looking out to sea, battling with competing emotions of abandonment, desolation, pride and fear.

I survived the trauma of our first evening meal: silver service, smiling waiters, chinking couples and the horror of 2 places at a table for 4. Yes we were ok – no I didn’t want the wine waiter – no more rolls thank you – yes everything was still fine with the meal, – no we didn’t want anything else……Oh God, I longed for Macdonald’s and a jaded 18yr old. “Did i want fries with it?” would have been music to my ears.

Apparently we were approaching a ‘Front’ that evening and the Captain assured us that although there maybe a slight ‘swell’ it was nothing to worry about. I wasn’t worried anyway, maybe we’d go down with the ship and join him then all this agony would fade away. But the ship didn’t sink and I lay awake awhile listening to the clothes rattle on their hangers, the glasses slide on the table, depressed and wanting to go home.

As is usual (but not always) with grief, the morning brought a new landscape. It did for me, literally and emotionally. We’d arrived in Stavanger, I saw the sun come up and rediscovered some of my resolve. The scenery was quite fairytale, small painted wooden chalets, misty lakes and seering mountains. Despite my pain, I felt lifted and calm but it soon became obvious that the fjords weren’t going to ‘cut it’ for a ten-year old. We had chosen excursions carefully together – cable cars, hairpin bend coach trips and the ubiquitous aquarium, so I was hopeful that we would both get something from the trip. However, my grief and his boredom, tiredness and an inadequate gift shop made a nasty combination and soon my patience was on the wane.

I began to regret the ‘adventure’ and struggled to keep the tears at bay. I didn’t have the energy or will power to try to engage with the information from the guide. I wasn’t the old Mummy who could conjure up some fun with a discarded biscuit wrapper or make up spontaneous silly stories when irritation and strop were looming. I was the New Me, still Mummy, but so exhausted on every level, so crushed by the new existence, grieving openly when appropriate but generally trying to hold it together with a butterfly thin exterior. I couldn’t do it anymore, I’d had enough. I wanted it all to stop. Right there, Right then, in the endless dank mist on the top of Mount Ulriken.

Not unsurprisingly the world didn’t stop, we cried and hugged, used up some krona on a packet of Pringles (the ideal souvenir from the sparsely filled ‘Gift’ shop) and made our way to cable car to sniff some strangers armpits for the tightly packed descent into town.

Although the reality of travelling with a ten-year old had knocked the shine off what I hoped would be a chance to bond again, I knew it had to work for me. I needed to find something in the landscape, in the achievement itself to give me a foothold in this new life. As we snaked our way through the villages I began to feel a change creep in. I listened carefully to the guide’s stories of the floods and fires and simple folk going about their daily task of being Norwegian. I knew I needed to embrace this day-to-day living and since February had thrust me into ‘the moment’ I’d found it easier to just go with it, to exist moment by moment and to simply ‘be’. So there, half way up a mountain in Aeslund I turned into Scarlett O’Hara and found myself thinking “the land, the land – I must go back to the land!”

Of course if you knew me you’d realise how silly a notion that really is. I don’t ‘do’ soil. The obligatory tomato plants I grew with my son couldn’t be fully harvested because by the time they were ripe they were in the throes of a ‘web-fest’ and I don’t ‘do’ things with eight legs either. Also I have a gardener. (Before you get ideas about me floating around in acres of lush rolling grassland, with a paddock in the lower field and someone called Giles who’s “just fantastic” with the horses….let me explain that the garden is small but the back injury previously refered to keeps me away from faffing about with a Flymo or any associated implements.)…..But in my head I had a new life in the hills, wearing layers of white petticoats, rustling around the kitchen, making something hearty out of the fruits of fertile soil I’d so lovingly tended. Maybe this was the way forward? Something simple, meaningful and pure.

These spiritual musings ended abruptly as we pulled into the rainy car park, hissed and clunked up to all the other coaches and disembarked. Dozens of us, all kagooled and camera-d, wrestling with rucksacks intent on consuming the next new vista.

A friend recently said, ” there must have been some great times?” Well, not exactly, that’s too stong a word. We had ‘nice’ times. I choose the word intentionally – nice – nothing more nothing less, times when he wasn’t grumpy and I wasn’t teary. Like playing table tennis and losing too many balls either to the sway of the boat or our incompetence and narrowly missing the perfect shot into a fellow traveller’s Guinness. We laughed and it was funny.

However, it wasn’t funny and I didn’t laugh when the small side zip on my posh frock wouldn’t do up. I was jittery anyway, going to a formal night, what a stupid idea and if the zip didn’t work soon I was going to burst into tears, put on the tv and get room service. My son tried valiantly but it was an adults grip I needed…one particular adult. The symbolism was too painful, but he really wanted to meet the Captain so I tried one last thing. I took it off again, zipped it up and managed to squirm and wriggle myself into it with zip already closed – Success (…courtesy of the death diet). Survived standing around with the sparkly glossy types while my son played impatiently on the sweeping staircase and I tried my very best to ignore the flirty, sipping, hairflicking fun that was going on all around me.

We saw the Captain, I shoved down another beautifully presented proper meal (shock to the system given I’ve been living off garlic bread, pasta and the odd uneaten fishfinger for 6 months)…and bed, another day ticked off.

So what was it all about?

It wasnt a cruise, a holiday, or a change of scenery. It wasn’t as a non-widow said “a chance to leave it all behind” (yep, that’s it Grief, I’m off. You stay here on the settee with your own box of tissues, look after the place and I’ll see you in a week. Off I skip swinging my bags with not a care in the world, doing a great Gene Kelly as I glide and twirl towards the taxi.)

Hmm, not really.

It was a chance to reconnect with something, it was a pilgrimage, it was a voyage to find a part of me that I desperately needed. I know my son can’t see this and he may not for many years. Though on the surface it didn’t tick his boxes he will benefit greatly and long-term.

In doing this journey, at this time I found a tiny spark of something, an atom of me that didn’t die with my husband. Something timeless, something pure. The part of me that knows I can go on and that I have to. The benefit to my son is that despite the hideous drawn-out fallout that I’ve had since our return and the second by second struggle to get through the memories of his birth, despite it all I found what I need to make a life for us and this is where it starts.

Eleven years ago I couldn’t walk. A damaged pelvis was compounded by an eventual cesarean, recovery would be slow, agonizing and complex. Eleven years yesterday I gave birth and began the tortuous road to health that left me housebound and isolated for 6 months. I lived on the bed and everything else stopped. Everything I recognised about myself had gone and my focus was on my baby. I became my mothering instinct, every breath was about that responsiblity. Despite the pain and the limitations I would do whatever it took to look after him.

I look for symbolism everywhere. I join the dots backwards, I see patterns.

Eleven years on not much has changed: I take small painful tentative steps in this unreal, scary new world. It hurts every day, every breath sometimes. But I do it, with each step I get stronger. This is how it is…..and though my son -my whole world- is pushing at the boundaries and racing away to the next essential phase, I’m right back there where I belong, doing whatever it takes. Holding him and holding on.

Emotionally, I carry him as a newborn.

x